Patient Education Links
AIDS Memorial Quilt, The (http://www.aidsquilt.org/about)
As the largest- and almost certainly the most powerful- ongoing community arts project in the world, the AIDS Memorial Quilt features more than 40,000 panels, each representing a life lost to the disease. The organization is in the process of photographing the quilt and placing its images online; visitors can currently search this site for a particular panel and view a photo.
AIDS Treatment Data Network (http://www.atdn.org)
For the most up-to-date news on developments in AIDS research (particularly in the fields of drug evolution and approval), try the AIDS Treatment Data Network, which updates its "HIV News" section on a daily basis. More in-depth coverage of key issues can be found in the site's center column. In the leftmost column are a series of enduring materials, including "Simple Fact" sheets covering various elements of AIDS care, information on government programs that help pay for required medication, a network program for patients with HIV/HepC co-infection, and more.
The HIV/AIDS Clinical Trials Information Service (ACTIS) and its sister service, the HIV/AIDS Treatment Information Service (ATIS), have merged into AIDSinfo. Brochures, fact sheets, drug information, and clinical trial updates are all available, and may be accessed in English or in Spanish.
Peter Staley, the co-founder of ACT-UP who was diagnosed with an AIDS-related complex in 1985, created and maintains this site with the assistance of a physician editor. Visitors can start by clicking on the tab marked (appropriately enough) "Start Here;" a series of lessons and webcasts offer background information and advice for patients positive for HIV. "Check my Meds" allow users to check interactions between medications or between a particular medication and food products; other tools include a reading list and an interactive message forum.
American Social Health Association (http://www.ashastd.org)
The mission of this organization founded in 1914, is to develop and disseminate accurate, medically reliable information on sexually transmitted diseases to the general public. Visitors to the Association website can find updates on its current/upcoming activities. Accurate facts- with emphasis on dispelling common misconceptions- are also provided for each of 14 different sexually transmitted diseases.
Body: An AIDS and HIV Information Resource, The (http://www.thebody.com)
The resources offered by this site may be characterized in one of two ways. First, the site offers basic reference information in 550 specific topic areas. Second, the Body connects patients with healthcare professionals (a regular "Ask the Expert" section), professional assistance of other types (contact information for the top AIDS support organizations), and one another (flourishing bulletin boards on a variety of topics).
Clinical Trial Data (http://www.clinicaltrials.gov)
patients can gain immediate access to information about ongoing clinical trials
Confidential HIV and STD Tests (http://ehivtest.com)
Individuals who have recently had unprotected sex, or who are contemplating HIV or STD testing at the outset of a new relationship, can learn about walk-in confidential testing sites across the country at this website. Pricing for a variety of specific tests is listed, along with information on the nature of each test and an explanation of how it works. Patients can pay for a selected test online; the test will be administered by the next business day.
GMHC (Gay Men's Health Crisis) (http://www.gmhc.org)
GMHC is a "not-for-profit, volunteer-supported and community-based organization committed to national leadership in the fight against AIDS." Highlights of the organization's website include an impressive section dedicated to nutrition, complete with healthy recipes, legal brochures covering debt management, disability, employee rights, and the like, and a helpful, common-sense article describing "Ten Ways to take Care of Yourself When You Have HIV Disease."
Graph My Labs (http://www.aidsmeds.com/graphs)
One of the most memorable services of AIDSMeds.com, Graph my Labs allows patients with AIDS or HIV to create colorful graphs of their test results over time, simply by entering the results as they are obtained. Labs may be graphed completely free of charge; visitors need only to supply a working e-mail address and password.
Join United Nations Program on AIDS (UNAIDS) (http://www.unaids.org)
For a more global perspective on the epidemic, visit this site, which offers a good deal of information on the disease itself, human rights and legal concerns, the epidemiology of HIV infection, and more. Click on "Publications" to open a huge archive of articles ranging from journalism to scholarship, where nearly any question you may have about the international effects of this pernicious condition is likely to be answered many times over.
National HIV Testing Resources (http://www.hivtest.org)
This site has resources on HIV testing including a national database of HIV testing sites and answers to many questions about HIV/AIDS and testing. This site can help people locate an HIV testing site in their area.
Pediatric AIDS Foundation (http://www.pedaids.org)
In 1988, wife and mother Elizabeth Glazer discovered that she, along with her children Ariel and Jake, was HIV-positive. In an effort to ameliorate the plight of the many thousands of families affected by the disease, Glazer co-founded the Pediatric AIDS Foundation and worked tirelessly on behalf of AIDS victims until her death in 1994. The Foundation offers fact sheets on pediatric AIDS, news reports, and information about events aimed at raising both money and awareness, at its home site.
Poz magazine tells the ongoing story of the AIDS epidemic; selected content, as well as the ability to subscribe to the print journal, is available here. Poz's editorial focus is mostly nonclinical, with topics such as "The 99 Greatest [AIDS-related] Moments of the 90s," but occasional articles do examine the drug pipeline and related matters. The journal is available in Spanish as well as English.
Project Inform (http://www.projectinform.org)
Since 1985, Project Inform has been dedicated to the invaluable mission of providing free, understandable information about HIV, AIDS, and related complications to anyone who needs it. A variety of publications support this goal: WISE Words, a newsletter published three times annually for women with HIV, PI Perspective, a journal that describes and analyzes recent research results, and an extraordinarily comprehensive "Introductory Treatment Packet," featuring a bevy of information for the newly-diagnosed patient. Also highly recommended is the site's multimedia library, which is filled with webcasts on most every HIV topic under the sun.